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Urban Challenger’s story: Running for John

28.07.17 Categories: Patient stories, Supporter stories, News from the hospital

For a third year running, Adrienne and Stuart Muir are raising money in memory of their son John. They share their incredible story.

‘On 4 September 4 2014 our twin boys John and Harry were born at St Thomas’s Hospital. Named after their grandfathers, both Harry and John spent time in the neonatal intensive care unit (NICU). Both boys were born at 34 weeks at an impressive six pounds, but as they were premature they needed a hand.

‘Devastatingly, five days after John was born, he was diagnosed with a previously undiagnosed genetic condition called Trisomy 13. He came off life support surrounded by his family and passed away at just eight days old.

‘It was so unfair, we felt like our family had been ripped apart at the seams. I had no idea how to piece it back together. The nurse in NICU were so respectful, we kept Harry and John together in John’s cot as much as we could and Harry loved snuggling up to his little brother. It was so lovely yet so heart-breaking in so many ways. It’s at those moments where I really understood the term “bitter sweet”.

‘In those final days with John, the one thing that we were both very clear about was that while it was the worst time of our lives, we wanted to do something to remember John and give back to a hospital who helped us in so many ways.

‘Having seen what these amazing people at Evelina London can do, we want to help provide them with some of the tools they need to continue doing this, and that is why we will be taking part in Guy’s Urban Challenge 2017.

‘Last year “Team Muir” raised enough money to purchase four resuscitation units for the new NICU room at Evelina London; something that many of you helped make possible. We are incredibly grateful to everyone who contributes to this cause, and honestly hope that none of you ever actually get to understand why.

‘There is not a day that goes by that we don’t think or talk about John. Having his twin brother growing each day is also a constant reminder of the hole in our family. We said we would honour John and each year we challenge ourselves to do something out of our comfort zone in his memory. This year we are supported by eleven friends and Team Muir is bigger and stronger than ever. We are blessed to have so many people helping.’

Inspired by Adrienne and Stuart's story? You can sponser Adrienne here or find out how you can take on your own challenge to support Evelina London.

Below: 'Team Muir' after completing this year's St Thomas' abseil.